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Posts Tagged ‘nealbinnnyc’

Neal in “Out in NJ” Magazine

I had the amazing opportunity to be interviewed by Out NJ!  Please check out their site because they do such amazing work!

Special Thanks to the amazing staff at Out NJ and especially staff reporter William R. Loschiavo

You can also view it online here: http://www.outinjersey.net/images/Magazine_PDF/Current/web_Jan_10.pdf

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From the Associated Press:

Conscious but paralysed: Belgian 'coma' case not unique

BRUSSELS – With a caretaker holding his hand, a Belgian man who was diagnosed as comatose for 23 years typed out a message Tuesday that he felt reborn after decades of loneliness and frustration. A leading bioethicist, however, expressed skepticism that the man was truly communicating on his own.

Car-crash victim Rom Houben was diagnosed as being in a vegetative state but appears to have been conscious the whole time, doctors here said. An expert using a specialized type of brain scan that was not available in the 1980s says he finally realized Houben was conscious and provided him with the equipment to communicate.

Assisted by a speech therapist who rapidly moved his finger letter by letter along a touch-screen keyboard, Houben told AP Television News that years of being unable to move or communicate left him feeling “alone, lonely, frustrated, but also blessed with my family.”

The therapist, Linda Wouters, told APTN that she can feel Houben guiding her hand with gentle pressure from his fingers, and that she feels him objecting when she moves his hand toward an incorrect letter.

“It was especially frustrating when my family needed me. I could not share in their sorrow. We could not give each other support,” Houben wrote during the interview at the ‘t Weyerke institute in eastern Belgium.

“Just imagine. You hear, see, feel and think but no one can see that. You undergo things. You cannot participate in life.”

Arthur Caplan, a bioethics professor at the University of Pennsylvania, said he is skeptical of Houben’s ability to communicate after seeing video of his hand being moved along the keyboard.

“That’s called ‘facilitated communication,'” Caplan said. “That is ouija board stuff. It’s been discredited time and time again. When people look at it, it’s usually the person doing the pointing who’s doing the messages, not the person they claim they are helping.”

Caplan also said the statements Houben allegedly made with the computer seem unnatural for someone with such a profound injury and an inability to communicate for decades.

Asked how he felt when his consciousness was discovered, Houben responded through the aide that: “I especially felt relief. Finally be able to show that I was indeed there.”

“Just like with a baby, it happens with a lot of stumbling,” he wrote.

The doctor who discovered that Houben had been wrongly diagnosed said that he is re-examining dozens of other cases.

Dr. Steven Laureys said he has discovered some degree of consciousness using state-of-the-art equipment in other patients but won’t say how many. He looks at about 50 cases from around the world a year but none are as extreme as that of Rom Houben, who was fully conscious inside a paralyzed body. Many center on the fine distinction between a vegetative state and minimal consciousness.

He said Tuesday that: “It is very difficult to tell the difference.”

His studies showed that some 40 percent of patients with consciousness disorders are wrongly given a diagnosis of a vegetative state.

“It is clearly unacceptable. It is four times out of ten that they think the patient is in a vegetative state but in reality he is minimally conscious,” Laureys said.

Patients from Europe and around the world brought to his center in Liege for a second opinion go through and PET scans, MRI’s and a battery of other tests during a weeklong reassessment.

“Sometimes patients fly in and there is all this hope. But after the tests we have to confirm they are the opposite case from Rom and that there is no error,” Laureys said. “But that too helps the family accept reality.”

In Belgium alone there are some 350 patients diagnosed as in a vegetative state, he said.

 

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I want to thank Julie S for this AWESOME story!

From Broadwayworld.com:

Over the course of its thirteen year run as a Broadway and touring show, the musical RENT by Jonathan Larson has touched the lives of many people across the world. With Rent closing on Broadway last year and the upcoming tour, playing at the Curran Theater in San Francisco October 6 and ending in January, fans across the country are wondering how they can thank the people involved in RENT in a way that does justice to the musical in its final incarnation, and also honour the creators and past cast and crew who have given so much to so many.

Led by uber-fan Aranka Golphy, fans have organized to begin a fundraising campaign for a RENT-related charity on behalf of the current touring cast.  The project, “RENT Fans Give Back Project,” is inspired by the idea that if everyone who enjoys RENT gives just a little, a lot of money can be raised to actively address some of the real world issues that Jonathan Larson depicts in the show.

After much consideration, Friends In Deed, a non-profit organization devoted to providing support to individuals facing life-threatening illnesses, was chosen to be the recipient of the “RENT Fans Give Back” project.

Friends in Deed, in connection with “RENT Fans Give Back,” has created a secure system for those who wish to participate by donating to Friends In Deed in honour of the current National Tour of RENT.

Click here for information on how to donate, learn more and become a part of this project to create a memorable gift for the cast, crew and everyone behind the scenes of RENT: The Broadway Tour.

Rent, written by Jonathan Larson and directed by Michael Greif, opened at Broadway’s Nederlander Theatre, on April 29, 1996, following a history making, sold-out, extended limited engagement at off-Broadway’s New York Theatre Workshop. The musical went on to win every major best musical award, including the Tony Award, as well as the Pulitzer Prize for drama. Rent played its final performance at the Nederlander Theatre on September 7, 2008 after playing 5,124 performances and 16 previews. Rent is the seventh longest running show in Broadway history and grossed over $280 million during its Broadway run.

Tours of Rent have crisscrossed the country almost continuously since late 1996 and the U.S. national tours have grossed over $330 million. The musical has been translated into every major language and been performed on six continents, including in the following countries: Argentina, Australia, Brazil, Canada, Chile, Finland, Germany, Hong Kong, Hungary, Iceland, Ireland, Italy, Japan, Korea, Mexico, Netherlands, New Zealand, Norway, Philippines, Portugal, Russia, Singapore, South Africa, Spain, Switzerland, and the United Kingdom.

For more information, including the complete schedule for Rent, The Broadway Tour, visitwww.siteforrent.com.

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